Gaugler, J.E., Potter, T. & Pruinelli, L. (2014) Partnering with Caregivers

There is no consistent definition of family caregiving. Some organizations such as the Alzheimer’s Association define caregiving as “attending to one’s health needs.” Many studies rely on family members’ self-identification as a caregiver, whereas others tend to use more objective measures to define family caregiving, such as the number of activities of daily living (ADLs) that a family member helps a relative with. If the latter definitional scope is selected, it is important to acknowledge the wide range of tasks that family caregiving often encompasses: family caregiving may include not only basic or instrumental ADL tasks but also management of specific dis- ease symptoms (eg, behavior problems caused by a relative’s dementia; nausea that is a result of a relative’s cancer therapy), financial help, or care coordination between health care professionals.